Hrönn Stefánsdóttir

Promote prevention, education and awareness

In May, the Arthritis Society of Iceland focuses on raising awareness of one of the most common chronic health conditions of our time – arthritis. Arthritis May is dedicated to all those with arthritis and to those who support them in their daily lives. It is a time to encourage education, empathy, and a new perspective on how we understand and respond to these diverse and often invisible conditions.

Arthritis can affect people of all ages – children as well as adults – and the symptoms are varied: Pain, stiffness, debilitating fatigue and inflammation. Although over 6,000 people are diagnosed with arthritis each year in Iceland, prejudice and ignorance are still widespread. It is therefore important that we speak openly about arthritis and the experience of living with it.

Arthritis is not one disease, but over 100 different conditions that affect the joints, muscles, tendons and ligaments – and even organs such as the heart, lungs and kidneys. It can be invisible, unpredictable and overwhelming. Many experience pain that is difficult to describe, debilitating fatigue that neither sleep nor rest relieves, and a reduction in their ability to participate in daily life, which can affect their identity, employment, and social life.

In Iceland, tens of thousands of people have some form of arthritis. Many of them are diagnosed at a young age – even as young children. Nevertheless, arthritis is still too often misunderstood. Stigma and the silence surrounding chronic pain and invisible illness make the situation even more difficult. That's why Arthritis May matters.

Education and awareness are key.

Arthritis May isn't just about raising awareness – it's also about increasing the knowledge of the public and professionals, and ensuring people get the treatment, support and understanding they need. It is important that we stop viewing arthritis as 'just an old person's disease', as it can affect people of all ages – and a person's quality of life is not necessarily determined by their age or the severity of their condition, but by their access to the right support.

We want to encourage people to get involved by sharing their experiences, listening to the stories of others, attending events, learning and supporting. This can be through social media, educational talks or simply by showing empathy in conversation with others.

Arthritis and the labour market – invisible barriers and untapped potential

One of the factors often overlooked in the discussion about rheumatic diseases is the impact on work life and professional capacity. Many people living with arthritis face challenges at work that relate not only to physical ability, but also to understanding and flexibility in the workplace. Fatigue, pain and reduced mobility can affect performance – not due to a lack of will or ability, but because of the limitations caused by the condition.

Many jobs are still too inflexible for people with chronic health conditions. The need for flexible working hours, remote working, breaks and adapted working conditions should not be a luxury, but a fundamental human right. When companies and organisations cater to the diverse needs of their staff, not only does job satisfaction increase – but the knowledge and experience of everyone is also better utilised.

There is much to be gained. Many people with arthritis want to be active in their working lives and can work if their working hours and conditions are adapted to their needs. In Iceland, the right to appropriate adjustments in the workplace is enshrined in law. Many people fall ill after completing their higher education and have invaluable insight and skills – but they need support and understanding to flourish. During Arthritis May, we are reminded that the world of work needs to be for everyone – including those with an invisible illness.

Every voice matters

Rheumatoid arthritis is also a time to remind us of the importance of research and progress in medicine. Although much has been achieved, there is still a long way to go when it comes to new medicines, rehabilitation, psychological support and access to specialists. With a stronger voice and a united effort, we can push for change and a better future for everyone living with arthritis.

We challenge you – whether you are a healthcare professional, a carer, or a person with arthritis – to take part in Arthritis May.

During Arthritis May, we at the Arthritis Society encourage people to get involved – whether that's by learning, sharing their experience, or supporting the Arthritis Society and research. By working together, we can increase understanding, improve services and create a future where no one has to live with arthritis without understanding and support.

The author is the vice-chair of the Arthritis Society of Iceland.